Worldwide Society of Wolfram Syndrome Families is committed to protecting your privacy and developing technology that gives you the most powerful and safe online experience. This Statement of Privacy applies to the Worldwide Society of Wolfram Syndrome Families Web site and governs data collection and usage. By using the Worldwide Society of Wolfram Syndrome Families website, you consent to the data practices described in this statement.

Collection of your Personal Information

Worldwide Society of Wolfram Syndrome Families collects personally identifiable information, such as your e-mail address, name, home or work address or telephone number. Worldwide Society of Wolfram Syndrome Families also collects anonymous demographic information, which is not unique to you, such as your ZIP code, age, gender, preferences, interests and favorites.

There is also information about your computer hardware and software that is automatically collected by Worldwide Society of Wolfram Syndrome Families. This information can include: your IP address, browser type, domain names, access times and referring Web site addresses. This information is used by Worldwide Society of Wolfram Syndrome Families for the operation of the service, to maintain quality of the service, and to provide general statistics regarding use of the Worldwide Society of Wolfram Syndrome Families Web site.

Please keep in mind that if you directly disclose personally identifiable information or personally sensitive data through Worldwide Society of Wolfram Syndrome Families public message boards, this information may be collected and used by others. Note: Worldwide Society of Wolfram Syndrome Families does not read any of your private online communications.

Worldwide Society of Wolfram Syndrome Families encourages you to review the privacy statements of Web sites you choose to link to from Worldwide Society of Wolfram Syndrome Families so that you can understand how those Web sites collect, use and share your information. Worldwide Society of Wolfram Syndrome Families is not responsible for the privacy statements or other content on Web sites outside of the Worldwide Society of Wolfram Syndrome Families and Worldwide Society of Wolfram Syndrome Families family of Web sites.

Use of your Personal Information

Worldwide Society of Wolfram Syndrome Families collects and uses your personal information to operate the Worldwide Society of Wolfram Syndrome Families Web site and deliver the services you have requested. Worldwide Society of Wolfram Syndrome Families also uses your personally identifiable information to inform you of other products or services available from Worldwide Society of Wolfram Syndrome Families and its affiliates. Worldwide Society of Wolfram Syndrome Families may also contact you via surveys to conduct research about your opinion of current services or of potential new services that may be offered.

Worldwide Society of Wolfram Syndrome Families does not sell, rent or lease its customer lists to third parties. Worldwide Society of Wolfram Syndrome Families may, from time to time, contact you on behalf of external business partners about a particular offering that may be of interest to you. In those cases, your unique personally identifiable information (e-mail, name, address, telephone number) is not transferred to the third party. In addition, Worldwide Society of Wolfram Syndrome Families may share data with trusted partners to help us perform statistical analysis, send you email or postal mail, provide customer support, or arrange for deliveries. All such third parties are prohibited from using your personal information except to provide these services to Worldwide Society of Wolfram Syndrome Families, and they are required to maintain the confidentiality of your information.

Worldwide Society of Wolfram Syndrome Families does not use or disclose sensitive personal information, such as race, religion, or political affiliations, without your explicit consent.

Worldwide Society of Wolfram Syndrome Families keeps track of the Web sites and pages our customers visit within Worldwide Society of Wolfram Syndrome Families, in order to determine what Worldwide Society of Wolfram Syndrome Families services are the most popular. This data is used to deliver customized content and advertising within Worldwide Society of Wolfram Syndrome Families to customers whose behavior indicates that they are interested in a particular subject area.

Worldwide Society of Wolfram Syndrome Families Web sites will disclose your personal information, without notice, only if required to do so by law or in the good faith belief that such action is necessary to: (a) conform to the edicts of the law or comply with legal process served on Worldwide Society of Wolfram Syndrome Families or the site; (b) protect and defend the rights or property of Worldwide Society of Wolfram Syndrome Families; and, (c) act under exigent circumstances to protect the personal safety of users of Worldwide Society of Wolfram Syndrome Families, or the public.

Use of Cookies

The Worldwide Society of Wolfram Syndrome Families Web site use "cookies" to help you personalize your online experience. A cookie is a text file that is placed on your hard disk by a Web page server. Cookies cannot be used to run programs or deliver viruses to your computer. Cookies are uniquely assigned to you, and can only be read by a web server in the domain that issued the cookie to you.

One of the primary purposes of cookies is to provide a convenience feature to save you time. The purpose of a cookie is to tell the Web server that you have returned to a specific page. For example, if you personalize Worldwide Society of Wolfram Syndrome Families pages, or register with Worldwide Society of Wolfram Syndrome Families site or services, a cookie helps Worldwide Society of Wolfram Syndrome Families to recall your specific information on subsequent visits. This simplifies the process of recording your personal information, such as billing addresses, shipping addresses, and so on. When you return to the same Worldwide Society of Wolfram Syndrome Families Web site, the information you previously provided can be retrieved, so you can easily use the Worldwide Society of Wolfram Syndrome Families features that you customized.

You have the ability to accept or decline cookies. Most Web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. If you choose to decline cookies, you may not be able to fully experience the interactive features of the Worldwide Society of Wolfram Syndrome Families services or Web sites you visit.

Security of your Personal Information

Worldwide Society of Wolfram Syndrome Families secures your personal information from unauthorized access, use or disclosure. Worldwide Society of Wolfram Syndrome Families secures the personally identifiable information you provide on computer servers in a controlled, secure environment, protected from unauthorized access, use or disclosure. When personal information (such as a credit card number) is transmitted to other Web sites, it is protected through the use of encryption, such as the Secure Socket Layer (SSL) protocol.

Changes to this Statement

Worldwide Society of Wolfram Syndrome Families will occasionally update this Statement of Privacy to reflect company and customer feedback. Worldwide Society of Wolfram Syndrome Families encourages you to periodically review this Statement to be informed of how Worldwide Society of Wolfram Syndrome Families is protecting your information.

Contact Information

Worldwide Society of Wolfram Syndrome Families welcomes your comments regarding this Statement of Privacy. If you believe that Worldwide Society of Wolfram Syndrome Families has not adhered to this Statement, please contact Worldwide Society of Wolfram Syndrome Families at admin@didmoad.org. We will use commercially reasonable efforts to promptly determine and remedy the problem.