DiF's website includes information on all four forms of Diabetes Insipidus, as well as articles, brochures, stories, FAQ's, networking, Research Opportunities, a Professional Section including the Water Deprivation Protocol, and a section for Pets. Please go to the Table of Contents for a detailed listing of the site.
The Snow Foundation’s mission is to raise awareness of and funding for research that one day will stop the progression of Wolfram syndrome. The Snow Foundation supports research being done at the Washington University School of Medicine in St. Louis (WUSM), as well as the patients and families dealing with Wolfram syndrome.
These final 100 sites were selected after a lengthy nomination period
and were included based on a variety of factors including their
readership, quality of information, search ranking, and update
A service of the U.S. National Library of Medicine®. Very instructive website
We are pleased to announce that the website we have created for the UK
families with Wolfram Syndrome is now up & running. Website address is
www.wolframsyndrome.co.uk . Please
take a look & let us know what you think & if there is anything that you
think should be added. We will add more info as we get it also. The
forum will be up & running soon.
Wolfram Syndrome website
A site about growing up with medical problems ...any ole type
Information regarding a second form of Wolfram Syndrome
The Official WSWSF Discussion Forum
Article on WS with many links to specific references
This is an excellent Science Daily article on the discovery of WS gene.
Brace yourself. This gives you the cold hard facts.
has many of the same symptoms as Wolfram Syndrome, but not the same disease.
A memorial page to a wonderful talented man, the honors bestowed upon him, and experience of his life.
National Organization for Rare Disorders, Inc.(NORD)
P.O. Box 8923
New Fairfield, CT 06812-8923
Telephone: (203) 746-6518
Fax: (203) 746-6481
Toll free: (800) 999-6673
TDD: (203) 746-6927
Juvenile Diabetes Foundation International
120 Wall Street
New York, NY 10005-4001
NIH/National Diabetes Information Clearinghouse
1 Information Way
Bethesda, MD 20892-3560
National Association for Parents of the Visually Impaired
P.O. Box 317
Watertown, MA 022471-0317
Vision Foundation, Inc.
818 Mt. Auburn Street
Watertown, MA 02472
NIH/National Eye Institute
Building 31 Rm 6A32
31 Center Dr MSC 2510
Bethesda, MD 20892-2510
National Association for Visually Handicapped
22 West 21st Street
New York, NY 10010
NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda, MD 20824-0105
American Diabetes Association
National Service Center
1660 Duke St.
Alexandria, VA 22314
Diabetes Insipidus Foundation, Inc.
4533 Ridge Drive
Baltimore, MD 21229
United Mitochondrial Disease Foundation
P.O. Box 1151
Monroeville, PA 15146-1151
For information on genetics and genetic counseling referrals, please contact:
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605